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About lupus suisse

A patient organ­isa­tion for people affected by lupus

lupus suisse is a Swiss patient organ­isa­tion for people affected by the rare dis­ease sys­tem­ic lupus erythematosus.

lupus suisse is a mem­ber of Rheum­a­liga Sch­weiz and ProRaris.
Most spe­cial­ist ques­tions are now eas­ily answered online thanks to arti­fi­cial intelligence.
lupus suisse offers more, how­ever. You receive reli­able inform­a­tion and well-foun­ded expert­ise tailored to the needs of mem­bers. You can access this inform­a­tion at home via this web­site. You receive the inform­a­tion through our news­let­ter or the pop­u­lar prin­ted magazine “lupus”.
In addi­tion, lupus suisse allows you to con­nect with oth­er affected indi­vidu­als. You can join a region­al self-help group or par­ti­cip­ate in workshops. 

The exchange and know­ledge pos­it­ively influ­ence how people cope with dis­ease-related bur­dens and their qual­ity of life. You are not alone with the disease. 

Ori­gins

lupus suisse is a patient organ­isa­tion by people affected, for people affected and their relatives.

lupus suisse was foun­ded in 1987 by com­mit­ted patients and has con­tinu­ously evolved.

In 2013, the news­let­ter became the pro­fes­sion­ally prin­ted and very pop­u­lar magazine “lupus”. The magazine was pub­lished in Ger­man and French from the beginning. 

Since 2014, lupus suisse has had its own web­site. This web­site was redesigned in 2026.

Fur­ther­more, mem­bers have reg­u­larly received the news­let­ter via email since 2022. It is writ­ten in Ger­man, French, and Italian. 

Max and Mar­ie-Louise Hagen con­trib­uted sig­ni­fic­antly to this devel­op­ment. They served as the asso­ci­ation’s pres­id­ent and edit­or-in-chief of the magazine “lupus”.

Since 2024, a new team has been ded­ic­atedly work­ing for the asso­ci­ation.

Until 2021, the asso­ci­ation was called “Sch­weizerische Lupus Eryth­em­at­odes Ver­ein­i­gung SLEV”. In the 2010s, lupus suisse became established. 

The sec­ret­ari­at is man­aged by Rheum­a­liga Schweiz.


Mis­sion state­ment and objectives

Lupus Europe meet­ing 2012.