Vor­stand & Sekretariat

A dedi­ca­ted team

The Exe­cu­ti­ve Com­mit­tee is respon­si­ble for mana­ging the asso­cia­ti­on and orga­ni­s­ing acti­vi­ties for its mem­bers. The law sti­pu­la­tes as fol­lows: ‘The Exe­cu­ti­ve Com­mit­tee has the right and the duty, within the powers con­fer­red upon it by the Artic­les of Asso­cia­ti­on, to mana­ge the affairs of the asso­cia­ti­on and to repre­sent it.’ (Art. 69 of the Swiss Civil Code) 

In accordance with Artic­le 7 of the Artic­les of Asso­cia­ti­on, the lupus suis­se Exe­cu­ti­ve Com­mit­tee is respon­si­ble for mana­ging the asso­cia­ti­on and orga­ni­s­ing the annu­al Gene­ral Mee­ting. It main­ta­ins cont­act with mem­bers and orga­nis­es events such as medi­cal talks and work­shops. The Exe­cu­ti­ve Com­mit­tee works to rai­se public awa­re­ness of syste­mic lupus erythematosus. 

The mem­bers of the Exe­cu­ti­ve Com­mit­tee (at least five mem­bers) are elec­ted by the Gene­ral Mee­ting for a term of two years. Mem­bers of the Exe­cu­ti­ve Com­mit­tee ser­ve in an hono­ra­ry capacity. 

Ser­ving on the board of lupus suis­se is a signi­fi­cant com­mit­ment. It is rewar­ding to be able to put one’s own expe­ri­en­ces and skills to good use. Being a board mem­ber is a joy and gives a gre­at deal in return. We are gra­teful for the warm rela­ti­on­ships we have with our mem­bers, with peo­p­le living with lupus and their fami­lies, with doc­tors, public aut­ho­ri­ties and other inte­re­sted par­ties.
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Vor­stand & Sekretariat

lupus-suisse-commitee-Bienlein-Martin_bsc

Mar­tin Bienlein

Pre­si­di­um

Exe­cu­ti­ve Com­mit­tee & Finance

lupus-suisse-commitee-Arend_Hendriks_bsc_20

Are­nd Hendriks

Exe­cu­ti­ve Board

Lupus maga­zi­ne

lupus-suisse-commitee-Panteli-Andreas_bsc

Andre­as Panteli

Exe­cu­ti­ve Committee

Com­mu­ni­ca­ti­on & inter­na­tio­nal relations 

lupus-suisse-commitee-Thomys-Heike_bsc

Hei­ke Thomys

Exe­cu­ti­ve Com­mit­tee, Finance

Advice and repre­sen­ta­ti­on for tho­se affected

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Pau­li­na Appel

Secre­ta­ri­at

Coor­di­na­ti­on

We ser­ve on the board on a vol­un­t­a­ry basis. Some of us are affec­ted by lupus our­sel­ves. We do our best to respond to que­sti­ons and con­cerns as quick­ly as pos­si­ble. If we are unable to do so imme­dia­te­ly or as quick­ly as you might expect, we ask for your understanding. 

lupus suis­se

was foun­ded in 1987 and ope­ra­tes as a non-pro­fit asso­cia­ti­on within the mea­ning of Artic­le 60 et seq. of the Swiss Civil Code.

In addi­ti­on to the Artic­les of Asso­cia­ti­on, which were last amen­ded by the Gene­ral Mee­ting on 22 August 2020, the­re are also inter­nal regu­la­ti­ons and other poli­cy and orga­ni­sa­tio­nal guidelines.

The postal address is: lupus suis­se, Josef­stras­se 92, 8005 Zurich, Tel. 044 487 40 67