Mission statement and objectives
What We Stand For
lupus suisse supports individuals affected by lupus. Those affected and their families are at the center of our activities. We also raise public awareness about lupus.
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We are committed to ensuring
- that people with lupus can lead a self-determined, dignified, and equal life.
- that the quality of life for people with lupus improves or at least can be maintained.
- that people with lupus connect with one another.
- that people with lupus receive support.
- that people with lupus receive medical knowledge and information.
- that lupus suisse continuously develops as an organization and committed partner for those affected, their families, and healthcare professionals.
- that healthcare professionals are sensitized to the topic of lupus in order to make rapid and well-founded diagnoses.
- that, in collaboration with medical specialists and other patient organizations, therapy and support for individuals with lupus and their families are ensured at a high level.
- that lupus and its unpredictable symptoms and associated conditions are known to the public, thereby increasing acceptance for people with lupus and their needs.
- that lupus suisse remains a strong patient organization, supported by an ever-growing number of members, donors, and partners.
Purpose and Goals
Purpose according to Article 2 of the Statutes
lupus suisse provides assistance to people throughout Switzerland who are affected by the disease lupus erythematosus (LE) and other collagen diseases.
It promotes medical, psychological, and social understanding of the disease through education, training, and prevention. It represents the interests of individuals with LE to the public and professionals. In doing so, it is guided by scientifically recognized principles.
lupus suisse pflegt den Austausch mit anderen Patientenorganisationen. Hier am Lupus Europe Treffen 2012.