Contact

Bern

Our group intro­du­ces itself:

We are a group of peo­p­le with lupus who meet regu­lar­ly to be among peers—without labels, wit­hout having to justi­fy our­sel­ves. The focus is on an equal exch­an­ge about what real­ly mat­ters in ever­y­day life: mana­ging ener­gy, work, rela­ti­on­ships, nut­ri­ti­on, and living a nor­mal life with a not-so-nor­mal companion. 

We also want to offer new­ly dia­gno­sed peo­p­le a place to arrive—so that they do not have to cope with the dia­gno­sis alone.

Who we are…

and what we do.

We are peo­p­le with lupus—very dif­fe­rent life sto­ries, tem­pe­ra­ments, and ever­y­day situa­tions. Around 30 indi­vi­du­als bet­ween 25 and 89 years old, con­nec­ted by a dia­gno­sis, but not defi­ned by it. 

We meet infor­mal­ly every two months: for a rela­xed get-tog­e­ther, to exch­an­ge infor­ma­ti­on and expe­ri­en­ces, and to sup­port one ano­ther. With us, the­re is space for honest que­sti­ons, shared laugh­ter, small moments of insight, and we rea­li­ze each time: Tog­e­ther, it is easier to bear.

What we want

Lear­ning tog­e­ther and gro­wing stronger

We want to streng­then cou­ra­ge for life and sup­port and accom­pa­ny one ano­ther, so that no one with lupus has to go through dif­fi­cult days alo­ne. Tog­e­ther, we over­co­me chal­lenges, share useful infor­ma­ti­on and per­so­nal expe­ri­en­ces, and crea­te a space full of trust and prac­ti­cal help. In doing so, we prac­ti­ce genui­ne soli­da­ri­ty: we listen, com­fort, cele­bra­te small pro­gress, and approach things with a touch of humor—because hope and a smi­le often help more than one might think. 

If you would like to help shape the pro­gram­me or sim­ply listen in wit­hout any obli­ga­ti­on, you are warm­ly invited.

Initi­al infor­ma­ti­on: Email

You can find the cont­act details in the mem­bers’ area.

When do we meet?

Every two months …

No regi­stra­ti­on is necessary.

Satur­day, July 18
2:30 PM | Ster­nen Muri

Sun­day, August 16
from 11:30 AM | Bar­be­cue with rela­ti­ves | Loca­ti­on to follow

Thurs­day, Sep­tem­ber 24
5:30 PM | Selbst­hil­fe Bern premises

Thurs­day, Novem­ber 26
5:30 PM | Selbst­hil­fe Bern premises

Satur­day, Decem­ber 12
11:30 AM | Christ­mas din­ner with rela­ti­ves | Details to follow

You can also find the next dates under Events.

Our mee­ting point

cen­tral­ly loca­ted in Bern

Selbst­hil­fe Bern
Boll­werk 41
3011 Bern

Cor­ner buil­ding, ent­rance around the cor­ner, 3rd flo­or (ele­va­tor available).

Impres­si­ons

Janu­ary 15, 2026 | Nord­pool | Issue 1

Janu­ary 15, 2026 | Swim­ming in the Aare | Issue 25

Janu­ary 15, 2026 | Red wine tasting | Issue 1