Well-being and qual­ity of life

Qual­ity of life

Health-related qual­ity of life is now a key con­sid­er­a­tion in health­care, where it is recor­ded and meas­ured. It refers to the sub­ject­ively per­ceived impact of health and ill­ness on vari­ous areas of life.
Health-related qual­ity of life is influ­enced by an indi­vidu­al’s health situ­ation and med­ic­al treat­ment. The suc­cess of a treat­ment also depends on the qual­ity of life. Meas­ure­ment meth­ods exist to record sub­ject­ive state­ments from patients. These are being used more fre­quently in nurs­ing and med­ic­al treat­ment, com­ple­ment­ing tra­di­tion­al phys­ic­al para­met­ers such as labor­at­ory results. 
The fact that qual­ity of life is being con­sidered in medi­cine rep­res­ents a paradigm shift. Chron­ic ill­nesses are on the rise, and their impact on qual­ity of life and well-being is now being mon­itored and measured. 
Par­tic­u­larly with chron­ic ill­nesses such as lupus, the goal of treat­ment is to achieve the highest pos­sible qual­ity of life.

Exer­cise des­pite pain

Exer­cise is very import­ant for people with lupus.

Many people with lupus suf­fer from pain and fatigue and there­fore stop exer­cising. How­ever, exer­cise is very import­ant. It helps pre­vent muscle loss, improve gen­er­al phys­ic­al fit­ness, main­tain joint func­tion, and reduce fatigue. Strength train­ing can also help increase bone dens­ity and reduce the risk of osteoporosis. 

Adapt your sport­ing activ­it­ies to your needs. Listen to your body. Dis­cuss the appro­pri­ate type of sport, reg­u­lar­ity, dur­a­tion, and intens­ity with your doc­tor or physiotherapist. 
Low-impact sports suit­able for people with lupus include swim­ming, yoga, walk­ing, or Pilates.

Do not engage in intens­ive sport dur­ing an act­ive flare-up and do not over­ex­ert your body.

Exer­cise plays an import­ant role. Here are some reas­ons why exer­cise is import­ant for people with lupus and can lead to improved well-being: 

Nutri­tion

The import­ance of a healthy diet

An anti-inflam­mat­ory diet is recom­men­ded for people with lupus and people with rheum­at­ism in gen­er­al. It reduces inflam­ma­tion and sup­ports the immune sys­tem. Symp­toms such as fatigue, joint pain, and rashes may poten­tially improve as a result. 

Avoid pro-inflam­mat­ory foods. Import­ant nutri­ents include anti­ox­id­ants, omega‑3 fatty acids, and vit­am­ins C, D, and E. Zinc and sel­en­i­um also play a major role. 

When start­ing a diet­ary change or adjust­ment, it is advis­able to be accom­pan­ied by a nutri­tion­ist. They will work with you to cre­ate an indi­vidu­al nutri­tion plan and ensure that all import­ant nutri­ents are included in the cor­rect amounts. 

Here you will find recipes and fur­ther information:

LUPUSLOG

Diary func­tions and pro­gress charts

More inform­a­tion on down­load­ing LUPUSLOG can be found in the rel­ev­ant app stores on your phone.

Diary and pro­gress charts

The diary is easy to use thanks to intu­it­ive user guid­ance, simple sym­bols, and clear graph­ics. You can indi­vidu­ally com­pile the per­son­al symp­toms you wish to track or those you have defined with your doc­tor. This gives you and your med­ic­al pro­fes­sion­als a clear over­view of health changes in con­nec­tion with your gen­er­al well-being. 

Export func­tions

The PDF export func­tion allows you to secure and archive your per­son­al diary entries. All data can be expor­ted as a PDF file and sent, for example, via email. 

More inform­a­tion on down­load­ing LUPUSLOG can be found in the rel­ev­ant app stores on your phone.