What rela­ti­ves say

Reports from relatives

On this page, you will find per­so­nal accounts writ­ten by rela­ti­ves. They, too, are affec­ted when a loved one is dia­gno­sed with lupus. In the­se accounts, they descri­be the chal­lenges they face. The situa­ti­on can be stressful, and rela­ti­ves may feel power­less or at a loss. 

It is only recent­ly that heal­th­ca­re pro­fes­sio­nals have begun to be bet­ter pre­pared to invol­ve fami­ly mem­bers and to reco­g­ni­se that they, too, may need support.

We have obtai­ned the con­sent of the rela­ti­ves who­se per­so­nal accounts you can find here to make their texts available to mem­bers on our website.

We would like to thank all the rela­ti­ves of tho­se affec­ted who have shared their sto­ries with us and with our members! 

This con­tent is reser­ved for members.

Infor­ma­ti­on about mem­ber­ship and its bene­fits can be found here: