Work and Lupus

When work gets too much

Often, tho­se affec­ted are alre­a­dy strugg­ling to cope with their workload even befo­re being dia­gno­sed with lupus.

Fati­gue, exhaus­ti­on and dif­fi­cul­ty con­cen­t­ra­ting impair work per­for­mance and take a toll on peo­p­le with lupus.

It might seem obvious to cut back on working hours or take on a dif­fe­rent job, often one that pays less. We would advi­se against this! 

Plea­se note – seek advice!

Under no cir­cum­stances should a decis­i­on to redu­ce working hours or chan­ge jobs be made wit­hout first see­king advice on employment and social secu­ri­ty law and obtai­ning detail­ed infor­ma­ti­on about the consequences!

Any “vol­un­t­a­ry” reduc­tion in working hours or pay will affect any future disa­bi­li­ty pen­si­on you may need!

Why? Becau­se the insu­red person’s pre­vious working hours are decisi­ve for deter­mi­ning the degree of disa­bi­li­ty, and their avera­ge annu­al inco­me across all their con­tri­bu­ti­on years is decisi­ve for cal­cu­la­ting the disa­bi­li­ty pension. 

Gra­de IV

A reduc­tion in working hours results in a loss of income.

The degree of disa­bi­li­ty is deter­mi­ned by com­pa­ring the person’s inco­me with and wit­hout the disa­bi­li­ty, i.e. by the per­cen­ta­ge loss of ear­ning capa­ci­ty.

If you are unable to work for a pro­lon­ged peri­od or face rest­ric­tions in your working life, it is advi­sa­ble to regi­ster with the Disa­bi­li­ty Insu­rance (DI). The DI can then initia­te ear­ly inter­ven­ti­on, the pri­ma­ry aim of which is to sup­port tho­se affec­ted and help them retain their cur­rent job. 

Get help from specialists

It is essen­ti­al that spe­cia­lists docu­ment performance.

As soon as it appears that a per­ma­nent reduc­tion in working hours or a lower-paid posi­ti­on is unavo­ida­ble as a result of lupus, this reduc­tion must be docu­men­ted in wri­ting by a lupus spe­cia­list, taking the rele­vant cri­te­ria into account.

You can find detail­ed infor­ma­ti­on on how to com­ple­te such a report and what steps to take next on the Social Secu­ri­ty page.

Other points to bear in mind

Part-time work

Peo­p­le who were alre­a­dy working part-time befo­re beco­ming ill also need to be careful, as the ‘mixed’ method of cal­cu­la­ti­on can result in a very low degree of disability.

Pen­si­on fund

A reduc­tion in working hours – and con­se­quent­ly in pay – always results in a reduc­tion in your pen­si­on from the pen­si­on fund (second pil­lar). You should also take into account any peri­ods of pro­lon­ged inca­pa­ci­ty for work. 

The­r­e­fo­re:

If you are dia­gno­sed with a chro­nic con­di­ti­on, we stron­gly advi­se you to seek advice on disa­bi­li­ty insu­rance. This applies even if you are working part-time or have a par­ti­al disability. 

Pos­si­ble advice cen­tres include:

Fur­ther infor­ma­ti­on about the IV:

Hos­pi­tal social services

in the event of hospitalisation

Can­to­nal Rheu­ma­tism Leagues

If you are dia­gno­sed with a chro­nic con­di­ti­on, it is advi­sa­ble to seek detail­ed advice. This is essen­ti­al if the con­di­ti­on results in a work inca­pa­ci­ty of bet­ween 20% and 39%, or if you have pre­vious­ly been working part-time!